7.18.12 • Philadelphia • Dinner

The Great Orphan Drug Debate

Join us at Del Frisco's of Philadelphia for steak and debate the evening of July 18 (Day 1 of the 7th Annual Rare Disease and Orphan Drug Leadership Congress).

Engage with industry leaders at this closed-door, industry-only event as they present opposing views on vital topics facing the rare disease and orphan drug industry. There will be a total of two debates, followed by audience questions and comments.

10.25.12 • San Francisco • One Day Event

The 2012 Innovation Lab

Don't miss the 2012 Innovation Lab, a one-day, industry-only event on October 25, 2012, at Cavallo Point in San Francisco, California. Join rare disease industry professionals for an engaging, interactive day from which you will emerge smarter and armed with real solutions for your brand.

About Innovation Lab

ILab events are by invitation only.

If you're interested in attending our next Innovation Lab event, please register now!

In the rare disease space there are few competing brands, which creates a unique opportunity to share best practices. We all face the same challenges—how to determine optimum price, how to assess market size, how to best engage the patient community—and there is great benefit to sharing our collective experiences and knowledge. This is the idea behind our industry-only Innovation Lab events.

Previous Innovation Lab Sessions:

Spring 2012 » The Great Orphan Drug Debate World Orphan Drug Congress

In the first debate, "The Value and Influence of Patient Communities: Real or Overrated?," it was argued that patients are not central to a successful commercialization strategy; there are only two critical ingredients to success—data and doctors. The opposing view held that in rare diseases the patient community has enormous influence over the commercial path—and ultimate success—of a product.

The second debate, "Can the Orphan Drug Pricing Model Be Sustained?," addressed the sustainability of current price levels in the rare disease and orphan drug market. While each therapy alone may only be an "unnoticeable" fraction of the budget, when taken together their impact is considerable.

Learn More »

Fall 2011 » Translating the Patient Experience into Commercial Success

The patient experience plays a vital role in marketing drugs, especially those used to treat rare diseases. Our most recent ILAB event, Translating the Patient Experience into Commercial Success, explored several topics, including:

  • Key Strategies for Accurate Market Sizing
  • Effective Collaboration between Industry & Advocacy
  • Strategies to Support Pricing, Reimbursement, and Market Access
  • Social Media's Unique and Significant Role for Patients and Caregivers

Learn More »

Spring 2010 » Video: Use it Right or Not at All

Video can add a vibrant and engaging dimension to your overall marketing mix. During our event we learned:

  • Best practices on when, why, and how to create video
  • How video can work to promote awareness, engagement, and conversion for your brand
  • How to fit video into your overall marketing mix
  • How best to promote your video (leveraging such tools as rich media ads, YouTube, and social media)
  • How to measure your program's success

Learn More »